How does one decide if one wishes to continue to be treated, for an essentially terminal disease?
Not my decision to make. However it is now Gom's decision.
His quality of life has been diminishing, and he is faced with possible death, from withdrawal of treatment- which he has expressed as being his chosen fate- or a procedure, which may give him a significantly improved, balance of life. It cannot be life saving, but alleviating the value, and quality, of remaining time.
It is a difficult choice, and I cannot decide for Gom. He has to make this choice for himself, based on how he feels.
Having seen him at his lowest ebb, and also having seen him after transfuions, and other life saving procedures, I am not convinced he is ready to 'throw in the towel', to use a sporting term. The basic hope for life's urge for continuance seems to spring eternal in the human heart.
He will face weekly transfusions, for the forseeable future, unless/until he has the procedure. If he does not have the procedure, he can choose not to undergo further transfusions. Surely, the beginning of his demise.
If he has the procedure, and it is unsuccsessful he will be back at square one.
We have a date, for consultation for the procedure, and that is the next step of the way.
I feel sure he is prepared to undergo the procedure, and essentially, is not ready to call it quits,- yet.
I was very pleased that his Specialist phoned me today, and gave me a chance to ask questions we had previously not had the opportunity to discuss. He is a very honest and forthright man. I appreciate his honesty. To me, it is a form of respect.
We have a new GP, who seems very caring, and optomistic.
I am having further tests re my health, and also, ongoing treatment.
I am pleased to learn there are new techniques, which will not involve painful, blood tests, which involved invasive taking of blood from my uncooperative, shrivelled, shy, and extemely painful veins. I could drink a gallon of water, and my veins would not want to see a needle of any description.
Why do the 'blood takers' refuse to listen when I tell them where the best site for obtaining blood, is located? Why do they insist they 'know better' and take if from horrible, painful, sites involving my wrist and thumb? GRRRRR!!
I feel ashamed, to be complaining about our lot in life. We have dear friends, who are undergoing far worse ordeals than we currently face.
An Indian Feast, designed by a creative eater! I do love Naan Bread!