I hope you hear the words.
We are living with "End Stage" which is very confronting.
And very fearful, for all concerned.
I know so many of my friends have already faced this journey.
I know so many of you have managed to survive this hideous trasition.
I do not not know how we will ultimately traverse this phase.
We take each day as it comes, and read our part from what transpires in any given hour.
We have support of Palliative Care. We have had ACAT assessments done, advising of high levels of Residential care.
We are yet to have the Community Nursing Care to visit.
I wish to care for Gom, in our home, untill the end of his time. We have been advised this should be possible.
There is no further medical intervention or investigation to be undertaken. He has ceased his Transfusions, and is visibly weaker, each day.
I try for strength each day. I have lovely support from our Son and our Daughter, and also our Granddaughter.
I have a recently bereaved Mrs Nice Neighbour to support me.
Our new GP is so supportive, it is comforting to know we have his backing care.
Queen, Teo Toriatte