A song from Queen seems to be appropriate.
I hope you hear the words.
We are living with "End Stage" which is very confronting.
And very fearful, for all concerned.
I know so many of my friends have already faced this journey.
I know so many of you have managed to survive this hideous trasition.
I do not not know how we will ultimately traverse this phase.
We take each day as it comes, and read our part from what transpires in any given hour.
We have support of Palliative Care. We have had ACAT assessments done, advising of high levels of Residential care.
We are yet to have the Community Nursing Care to visit.
I wish to care for Gom, in our home, untill the end of his time. We have been advised this should be possible.
There is no further medical intervention or investigation to be undertaken. He has ceased his Transfusions, and is visibly weaker, each day.
I try for strength each day. I have lovely support from our Son and our Daughter, and also our Granddaughter.
I have a recently bereaved Mrs Nice Neighbour to support me.
Our new GP is so supportive, it is comforting to know we have his backing care.
I hope you hear the words.
We are living with "End Stage" which is very confronting.
And very fearful, for all concerned.
I know so many of my friends have already faced this journey.
I know so many of you have managed to survive this hideous trasition.
I do not not know how we will ultimately traverse this phase.
We take each day as it comes, and read our part from what transpires in any given hour.
We have support of Palliative Care. We have had ACAT assessments done, advising of high levels of Residential care.
We are yet to have the Community Nursing Care to visit.
I wish to care for Gom, in our home, untill the end of his time. We have been advised this should be possible.
There is no further medical intervention or investigation to be undertaken. He has ceased his Transfusions, and is visibly weaker, each day.
I try for strength each day. I have lovely support from our Son and our Daughter, and also our Granddaughter.
I have a recently bereaved Mrs Nice Neighbour to support me.
Our new GP is so supportive, it is comforting to know we have his backing care.
Queen, Teo Toriatte
http://youtu.be/YG0AUw8B7Yk
23 comments:
My thoughts and prayers are with you Meggie at this difficult time - sounds trite but it is all I can think of to say. Wish there was something any of us could do to make this easier for you and indeed for GOM.
Love and hugs
Jane
Thinking of you through this very difficult time Meggie. You can only take it one day at a time. Sending a big warm hug x
Keeping you in my thoughts - the journey is not an easy one and I'm glad to hear you have help. Know you have the support of your blogger friends as well...
I am glad to hear that you have good support at this time, Meggie. I am holding you in my thoughts.
Meggie, sending thoughts, prayers and hugs to you and your family.
It's a lonely journey, dear Meggie, but I hope that it consolation for you that we are here for you, sending our spirits to wrap comforting arms around all of you. I think of you every day. I hope you can feel the love that surrounds you.
I'll be holding you in my heart during this difficult time, Meggie.
Jeanne
I'm so sorry Meggie and am sending you both my love xx
Meggie, I am so very sorry for you both. I know your heart must be breaking as you care for him; but what a wonderful expression of love this is. I think of you often and pray for strength for you.
Oh Meggie - I feel for you and all yours - watching someone you love slowly pass from your presence is the hardest thing in the world - I hope and pray it will be a peaceful and gentle experience for you all and I will for you the strength to cope with it all (((hugs))) from across the other side of the world
so sorry, but glad that you have the support you will need. ((hugs))
Rely on all the support you can get. This will be a difficult time but you are a very strong woman and can get through it. Our thoughts are with you.
Dear Meggie, my heart goes out to you at this sad but so very precious time. It is so difficult. You are giving him love, care and support, and honesty. I wish I could be there to help you.
I send love and hugs, and tears.
my prayers and thoughts go out to you. May the time he has left be generous and kind. Hugs and peace and love to you.
You are in my thoughts dear Meggie - and all I can think of is the word "peace."
May this precious, sad time be as peaceful as possible for you both.
oh, dear Meggie,
how very sad for you. I am thinking of you and wish you strength in this awful time.
xxx
Sweet Meggie. I wait for your posts and fear reading them. I am thinking of you... in prayer too.
Meggie,
May each day bring you a little of life's special treats as you help GOM with his final journey. You are a lady of great courage and love- it is of comfort to this friend to know that there are people helping you help GOM.
Sending you a big Cyber Hug.
Warmest regards,
Anna
Nothing I say can change your situation, but please know that I care. Hugs and strength to you Meg my friend. ALI XXX
Hi Meggie,
Since your last post, I've been checking back frequently to hear how things are for you. It sounds like things are pretty rough.
What you are doing is an amazing gift to your dear GOM. Every day you give him at home is a blessing. Good on you Meggie.
xoxo Jelly
Dear Meggie, sending you strength and love, and holding you in my heart as you go this this sad time.
So glad he is being cared for at home with his family around him, you are a rock.
big hugs dear girl..
xox
My heart goes out to you. So sad, so tough for you all. xx
Hugs to you both. You are in my heart.
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